The Kidney TRUST
kidneytrust.org/new/enews/2010-07/maryland-man-aims-make-difference/

Maryland Man Aims to Make a Difference in the Fight Against Kidney Disease

For Kenneth Mancle, a New Jersey Native who currently resides in Temple Hills, Maryland, chronic kidney disease (CKD) is a fact of life and has been since 1996 when he was first diagnosed with the condition that affects one in six American adults.  At age 39, Kenneth has been on dialysis since November of 2000 and because he has a rare blood type, has been on a waiting list for a kidney transplant for the last six years.

Kenneth Mancle is a tireless advocate for kidney disease awareness.

Kenneth is realistic about the consequences of kidney disease, but irrepressibly optimistic about the future.  He is Chairman and CEO of his own company, the AllStar Entertainment Group, LLC, married and the father of two teenagers, and a tireless advocate for kidney disease awareness.

“It’s almost unbelievable to me that this disease affects more than 30 million people and hardly anybody knows about it, aside from those that have had it affect them personally,” said Kenneth in a recent interview.  “My aim is to educate those who don’t know about CKD on the consequences so that they can take steps now to head off kidney failure and avoid dialysis in the future.”

Kidney disease struck Kenneth as a young man. In retrospect, he knows that an usually high fever caused scarring of the kidneys and made him vulnerable to CKD.  As an African-American he had an additional risk factor.  Kenneth first began experiencing symptoms like headaches and fatigue while he was in the Navy in the early 90’s, before being diagnosed with the disease in 1996 while attending college.

“I feel fortunate,” says Kenneth, “I haven’t had to deal with really adverse situations. By working with my doctors, I’ve managed to stay just ahead of upcoming problems, so my health while on dialysis for all these years is good.  My kidneys were going to fail eventually, but for other people it’s not necessarily going to happen like that.  I believe that a little bit of information goes a long way in empowering people to take charge of their health.  If people know the facts about CKD they can take steps to head it off and hopefully avoid ending up on dialysis.”

Despite a busy schedule at home and work, and an active social and family life, Kenneth finds time to give back to the community through activities like the DaVita Kidney Awareness Time Run/Walks.  “Don’t kid yourself,” says Kenneth. “I have my moments of doubt and fear about CKD, and it’s a daily challenge for me and my family.  But, I find that by living in the moment and finding ways to help others, I can stay on course.  I’m hoping that because of my efforts someone else will be able to avoid the path to kidney failure that I was on.”